Resources and Support Groups Related to Genetic Diseases

The Mount Sinai Department of Genetics and Genomic Sciences
Visit their website: http://www.mssm.edu/genetics/genetic_diseases.shtml

Jewish Genetic Disease Consortium
The GDF has strengthened its alliance with the Jewish Genetic Disease Consortium, a group of 15 Jewish genetic disease organizations of which the GDF was a founding member, to bring awareness to the Ashkenazi population worldwide.
Visit their website: http://www.jewishgeneticdiseases.org/

American Porphyria Foundation
The APF is dedicated to improving the health and well-being of individuals and families affected by Porphyria.
Visit their website:  http://www.porphyriafoundation.com/

Fabry Support and Information Group
Fabry Support and Information Group (FSIG)’s mission is to raise awareness of Fabry disease and its symptoms. The FSIG website provides mutual self-help by linking patients and family members/caregivers.
Visit their website: http://www.fabry.org/

Gaucher Disease Patient & Family Support Group
http://www.mssm.edu/gaucher/

International Center for Fabry Disease at Mt. Sinai
Visit their website: http://www.mssm.edu/genetics/fabry/

International Fabry Support Group

International Niemann-Pick Patient & Family Support Group

Mount Sinai Sickle Cell Disease Program
This is an NIH-funded program that sponsors research projects and provides clinical and psychosocial services to serve the patients from the sickle cell disease community.
Visit their website at Mount Sinai.

National Tay-Sachs & Allied Disease Association, New York Area
The mission of the National-Tay Sachs & Allied Diseases Association is to lead the fight to treat and cure Tay-Sachs, Canavan and related genetic diseases and to support affected families and individuals in leading fuller lives.
Visit their website: http://www.ntsad-ny.org

Evan Lee Ungerleider Foundation

Corey J Ross Foundation

Matthew Forbes Romer Foundation

Related links:
Mission
GDF Board
GDF Medical Advisors
Use of Funds