Kelly Edwards, TV host, designer and lifestyle expert has a brother with a rare genetic disorder. She is committed to helping her brother and others who are suffering from genetic diseases. Kelly has joined the GDF Board of Directors and will act as spokesperson for the organization. She is currently co-host of the Style Network’s new show “Tacky House” but is finding time to help fight genetic diseases and create awareness for the GDF.
GDF’s “Raise Your Glass” Event a Big Success
Over 130 people attended the GDF’s Raise Your Glass event, raising over $25,000 to help fund genetic disease research and education.
Lysosomal Storage Disorders Among Children More Common Than Previously Thought
Results from an Austrian study help make a case for broader neonatal screening.
FDA Approved Drug Shows Promise for Treating WHIM Syndrome
A new study reports that the drug plerixafor may have promise for treating people with WHIM syndrome.
Knowledge is Power
If you're thinking of having children or have a family history of disease, genetic testing can provide vital information.
Your support can lead to remarkable gene discoveries and treatments that fight against genetic diseases.
