Legislation to Strengthen NY’s Newborn Screening Program
Wednesday, January 27th, 2010State Senators Skelos and Hannon announce legislation to add Pompe, Fabry, Niemann-Pick, Gaucher and SCID to New York’s newborn screening program.
read more...FDA Unveils Transparency Initiative
Wednesday, January 27th, 2010Details on the FDA’s new Transparency Initiative released.
read more...An Unusual and Inspiring Canavan Disease Discovery
Wednesday, December 30th, 2009An inspiring story of a family affected by Canavan Disease and clues that may help lead to a cure.
read more...Federal Genetic Nondiscrimination Law Now in Effect
Monday, December 7th, 2009The landmark Genetic Information Nondiscrimination Act went into effect today.
read more...Open Position: Part-time Director
Monday, December 7th, 2009The GDF is looking to hire a part-time Director.
read more...Pfizer to Enter Market for Rare Diseases
Friday, December 4th, 2009Pfizer has licensed the rights to market a drug for Gaucher disease from an Israeli biotech company.
read more...Genetic Testing Reveals Devastating Illness (NPR)
Monday, November 23rd, 2009Charles Sabine’s shares his story of genetic testing and Huntinton’s Disease.
read more...GDF in vino veritas Benefit Event and Auction 2009
Monday, September 28th, 2009The Genetic Disease Foundation
Cordially Invites You To A Premiere Wine Experience and Dinner
Wednesday, October 14, 2009
The Plaza – New York City
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