GDF’s “Raise Your Glass” Event a Big Success
Tuesday, December 13th, 2011Over 130 people attended the GDF’s Raise Your Glass event, raising over $25,000 to help fund genetic disease research and education.
read more...Lysosomal Storage Disorders Among Children More Common Than Previously Thought
Wednesday, December 7th, 2011Results from an Austrian study help make a case for broader neonatal screening.
read more...The 2011 Prader-Willi Classic at PGA National
The 8th Annual Prader-Willi Classic is set for January 13-15, 2012 at the PGA National Resort & Spa in Palm Beach Gardens, Florida. The Annual Prader-Willi Classic, in honor of Josilyn Faith Levine and Harold Wilkinson IV, raises funds for the Genetic Disease Foundation and continuing research to help find a cure for Prader-Willi Syndrome. [...]
read more...FDA Approved Drug Shows Promise for Treating WHIM Syndrome
Friday, September 30th, 2011A new study reports that the drug plerixafor may have promise for treating people with WHIM syndrome.
read more...New California Law Protects Against Genetic Discrimination
Thursday, September 8th, 2011The California Genetic Information Non-discrimination Act was signed into law, extending two CA civil rights laws to more broadly protect Californians against genetic discrimination.
read more...GDF to Host ‘Know Your Genes’ Event This November
Know Your Genes Event SAVE THE DATE Monday, November 14th, 2011 6-9pm Glass Houses Join the Genetic Disease Foundation for a premiere wine tasting event. Enjoy delicious wines and spectacular views of New York City from the Chelsea Art Towers, along with the opportunity to learn how you can get started on “Knowing Your Genes” [...]
read more...New CDC Pediatric Genetics Website
Tuesday, January 25th, 2011A new CDC website provides valuable information about children and genetics that every family should know.
read more...Study Results Find Surprising Reactions to Consumer Genetic Test Results
Friday, January 21st, 2011Two recently published studies indicate that concern over patient anxiety relating to consumer genetic test results may be overblown.
read more...NIH Genetic Testing Registry Planned for 2011
Tuesday, January 11th, 2011The registry will promote sharing of information between test developers, manufacturers, health professionals and the public.
read more...Genome Analysis of Unborn Children Shows Promise
Friday, December 17th, 2010Mapping the genome of a fetus from its mother’s blood could mean less risky screening for prenatal diseases.
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