General News

Genetics Day on the Hill

Saturday, July 10th, 2010

The fifth annual Genetics Day on the Hill is Thursday, July 15th in Washington D.C.

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National Library of Medicine Launches New Mobile Service

Thursday, January 28th, 2010

Find health and disease information “on the go” on the new National Library of Medicine mobile site.

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FDA Unveils Transparency Initiative

Wednesday, January 27th, 2010

Details on the FDA’s new Transparency Initiative released.

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An Unusual and Inspiring Canavan Disease Discovery

Wednesday, December 30th, 2009

An inspiring story of a family affected by Canavan Disease and clues that may help lead to a cure.

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Federal Genetic Nondiscrimination Law Now in Effect

Monday, December 7th, 2009

The landmark Genetic Information Nondiscrimination Act went into effect today.

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Genetic Testing Reveals Devastating Illness (NPR)

Monday, November 23rd, 2009

Charles Sabine’s shares his story of genetic testing and Huntinton’s Disease.

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John Crowley’s Extraordinary Measures

Monday, September 28th, 2009

“Extraordinary Measures,” a new movie about the true story of John and Aileen Crowley, whose children were diagnosed with Pompe Disease will open in April 2010.

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