FDA Unveils Transparency Initiative
Wednesday, January 27th, 2010Details on the FDA’s new Transparency Initiative released.
read more...General News
An Unusual and Inspiring Canavan Disease Discovery
Wednesday, December 30th, 2009An inspiring story of a family affected by Canavan Disease and clues that may help lead to a cure.
read more...Federal Genetic Nondiscrimination Law Now in Effect
Monday, December 7th, 2009The landmark Genetic Information Nondiscrimination Act went into effect today.
read more...Genetic Testing Reveals Devastating Illness (NPR)
Monday, November 23rd, 2009Charles Sabine’s shares his story of genetic testing and Huntinton’s Disease.
read more...John Crowley’s Extraordinary Measures
Monday, September 28th, 2009“Extraordinary Measures,” a new movie about the true story of John and Aileen Crowley, whose children were diagnosed with Pompe Disease will open in April 2010.
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