News

Supreme Court Rules Human Genes May Not Be Patented

June 13, 2013

Ruling may decrease cost of gene tests for patients

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Pfizer Inc. Partners with Russian American Foundation for Gaucher Disease Awareness

June 6, 2013

Information About Genetic Diseases for Russians of Jewish Descent

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Shire Brave Award Honors Caregivers

May 31, 2013

Nominations for 2013 Brave Award being accepted through June 30th

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Help “Fill the Park for Charity” for GDF on July 19th

A portion of ticket sales made at www.mets.com/gdf will go to GDF

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Save the Date: Friday, July 19th

New York Mets Genetic Disease Awareness Night to Support GDF

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JN1-TV Features Jewish Genetic Screening Program

May 7, 2013

Jewish Genetic Disease Consortium helps educate Jewish couples about genetic screening for family planning

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RareConnect Online Rare Disease Network Announces 40th Community

April 30, 2013

Through RareConnect, patients and those who care for them can communicate in a safe, moderated online forum in several languages

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Free Webinar on Affordable Care Act and Rare Disease Treatments

April 17, 2013

Global Genes hosts the next in its series of free webinars on May 1, 2013

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Genzyme Accepting Scholarship Applications from Students with Lysosomal Storage Disorders

April 8, 2013

Deadline is April 30th for $2,500 Award

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“Facing Fabry” Shines Light on Patients & Families with Rare Genetic Disease

March 28, 2013

Genzyme created film in recognition of International Fabry Awareness Month in April

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