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Beautiful new book, “An Ordinary Day,” documents families living with rare genetic diseases
Acclaimed portrait photographer Karen Haberberg recently turned her lens on families raising children with rare genetic conditions in a stunning new book.
Elisa and Jim Ross and the GDF Breast Health Fellowship
The Ross Family and the GDF support breast cancer education and management at the University of Michigan.
Dr. Robert J. Desnick Honored with NORD Rare Impact Award
NORD honors Dr. Robert Desnick with 2017 Rare Impact Award.
Knowledge is Power
If you're thinking of having children or have a family history of disease, genetic testing can provide vital information.
Your support can lead to remarkable gene discoveries and treatments that fight against genetic diseases.
